We know how much there is to learn and manage when your child has long-term medical needs. We're here to provide resources that can help with the considerable responsibilities that come with caregiving.

Resource Guide

We’ve compiled a resource guide to help you navigate caregiving, so you can focus on helping your child. The guide contains tips, tools, links, and information for:

  • Child health specialty services, like occupational, physical, or speech therapy.
  • Financial and resource assistance, including help paying for bills and daily needs.
  • Understanding health information about your child’s condition from trusted sources.
  • Getting organized with ongoing care to help manage your child’s medical information, appointments, medication, and more.
  • Child educational support, including school accommodations and services that help tailor education to your child’s health and developmental needs.
  • Caregiver and family support and advocacy to help you overcome the hardships of ongoing care and equip your child for self-advocacy.
  • Behavioral, mental health, and spiritual care services to support wellness for your child, the whole family, and your relationships.
  • Special events, camps, and treats, offering fun and empowering experiences for your child and family.

Family Resource Center

Our Family Resource Center connects patient families to common community resources. We can help you navigate your loved one's medical care, get food and transportation assistance, sign up for public insurance and the MyChart patient portal, and more.

If you need help, please drop by our office on Tuesdays or Wednesdays from 1 p.m. – 4 p.m. You can find us in the Children’s Hospital – West lobby (not the new hospital tower).